Take Action
Stay Connected
Join our mailing list by filling out the form above or sending an email to:
Follow @hopeforpdcd on social media, like our posts, comment, and reshare! Engagement helps our posts reach more people and raise more awareness.
Share Your Story!
Use our Media Outreach Toolkit to contact local or national media or write an op-ed (letter to the editor). For more information email:
Contact Your Elected Representatives
Contact your representatives either by phone or email and let them know why access to therapies for rare diseases like PDCD is so critical. If you have a personal story, share it with them!
You can also use the form letter link to quickly and easily send a standardized letter.
Donate
Help kids with PDCD by donating to the Hope for PDCD Foundation. One Hundred percent of donations go toward finding a cure for PDCD.
Find more information on the Hope For PDCD website.
